Patient workshop 2024
We're excited to gather again in Copenhagen, Denmark, August 23-25
Read more
We're excited to gather again in Copenhagen, Denmark, August 23-25
Read moreSara Satir, coach and mom of a child with epilepsy, on guilt and living guilt-free
Read moreFor DNA Day 2024, we're thrilled to unveil a new family resource
Read moreThe 2nd International Patient Workshop will unite families, researchers and clinicians in Denmark in August 2024
Read more🌍 Join the Movement for Rare Disease Day. Spread awareness and show support 🌍
Read moreArticle on the Networking Support Scheme of the EU's European Joint Programme on Rare Diseases highlights our conference
Read more