November 19, 2023
Our conference has been featured!
Article on the Networking Support Scheme of the EU's European Joint Programme on Rare Diseases highlights our conference
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September 22, 2023
Christmas gift
All families who participate in the Natural History Study by October 12 can now sign up for a Christmas gift!
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September 18, 2023
Uxue’s family advocates for change
An AGO1 family on why it is so important to get a diagnosis and find a community
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August 22, 2023
Celebrating Our Inaugural Conference
We look back with pride and gratitude as we celebrate the anniversary of our very first Argonaute Syndromes conference!
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July 17, 2023
AGO2 is now AGO Alliance
Our association now formally represents all Argonaute genes, and our families have voted for their new favorite name!
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July 14, 2023
Annual Report 2022 published
2022 was the second year of our patient group, and what a year it was!
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