Guest blog: Stop feeling guilty
Sara Satir, coach and mom of a child with epilepsy, on guilt and living guilt-free
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Sara Satir, coach and mom of a child with epilepsy, on guilt and living guilt-free
Read moreFor DNA Day 2024, we're thrilled to unveil a new family resource
Read moreThe 2nd International Patient Workshop will unite families, researchers and clinicians in Denmark in August 2024
Read more🌍 Join the Movement for Rare Disease Day. Spread awareness and show support 🌍
Read moreArticle on the Networking Support Scheme of the EU's European Joint Programme on Rare Diseases highlights our conference
Read moreAll families who participate in the Natural History Study by October 12 can now sign up for a Christmas gift!
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