May 25, 2026
Annual report 2025
Celebrating our milestones, supporting each other, and growing our family network.
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May 25, 2026
Celebrating our milestones, supporting each other, and growing our family network.
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May 10, 2026
We’ve just released an infographic capturing all the best moments from our Third Patient Family Conference in Prague
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January 13, 2026
New study shows that mice losing AGO1 show key features of autism spectrum disorder
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November 22, 2025
Celebrating progress and community: our 2024 highlights in research, family support and global connection
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November 18, 2025
New study by Nakanishi lab shows that AGO mutants keep the protein's shape, but possibly act as “miRNA sponges"
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November 2, 2025
New research shows that tiny timing errors in how AGO2 controls genes may explain brain changes in LESKRES syndrome
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