
September 18, 2023
Uxue’s family advocates for change
An AGO1 family on why it is so important to get a diagnosis and find a community
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September 18, 2023
An AGO1 family on why it is so important to get a diagnosis and find a community
Read moreAugust 22, 2023
We look back with pride and gratitude as we celebrate the anniversary of our very first Argonaute Syndromes conference!
Read moreJuly 17, 2023
Our association represents Argonaute genes beyond AGO2, and our families have voted for their new favorite name!
Read moreJuly 14, 2023
2022 was the second year of our patient group, and what a year it was!
Read moreJune 16, 2023
Advisory board member Prof. Piton published a new study on the effects of AGO1 mutations in worms with Prof. Ambros & Prof. Zinovyeva. It shows that some Argonaute syndrome mutations affect Argonaute functionality more adversely than the complete loss of Argonaute itself.
Read moreMarch 6, 2023
Listen to Nora & fellow rare disease advocates at a panel in honour of Rare Disease Day 2023
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