September 18, 2023
Uxue’s family advocates for change
An AGO1 family on why it is so important to get a diagnosis and find a community
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August 22, 2023
Celebrating Our Inaugural Conference
We look back with pride and gratitude as we celebrate the anniversary of our very first Argonaute Syndromes conference!
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July 17, 2023
We are now AGO Alliance
Our association represents Argonaute genes beyond AGO2, and our families have voted for their new favorite name!
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July 14, 2023
Annual Report 2022 published
2022 was the second year of our patient group, and what a year it was!
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June 16, 2023
New study models AGO1 mutations in worms
Advisory board member Prof. Piton published a new study on the effects of AGO1 mutations in worms with Prof. Ambros & Prof. Zinovyeva. It shows that some Argonaute syndrome mutations affect Argonaute functionality more adversely than the complete loss of Argonaute itself.
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March 6, 2023
RAREis Global Advocate Grant panel with AGO2
Listen to Nora & fellow rare disease advocates at a panel in honour of Rare Disease Day 2023
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