These are some of our stories. Thank you for supporting all the Argonaute children out there.
These are some of our stories. Thank you for supporting all the Argonaute children out there.
Devyn is a sweet, playful young lady who loves cuddles and sensory play. She has gotten much steadier on her feet over the years (thanks to her service dog). She uses her communication device, gestures, and clips from her favorite shows to express herself and is working on her reading and writing skills. Sky’s the limit for Devyn!
Carrigan has always struggled to learn and has always seemed to have behavioral issues. She has seen a speech therapist since birth. Crawled at 11 months. Walked at 17 months. Had a feeding tube from 11 months until the age of 7.
Jacob is happy and learning new things, he can ride a bike with support, but cannot understand traffic. He cannot self-regulate, control his impulses, or differentiate between safe/dangerous situations.
Holly is an extremely happy, peaceful child with the kindest heart. She makes the greatest effort despite the challenges!
Johannes' low muscle tone was noticeable right after birth, but even drop seizures did not stop him from learning to walk. With his walking trainer or at the hand he explores the world. Johannes asserts his will even without speech and he delights us daily with his infinite affection.
Alex started speaking six months ago with 2-3 word sentences. He rarely gets sick and attends mainstream nursery, starting school next year.
He is developmentally delayed- and is currently around two years old. Shrek or any of my favorite movies makes him smile.
Casadee has always been such a joy, full of sass and sunshine! We realized early on that she did not progress like our other daughters’ had, and began a 20-yr-quest for a diagnosis. Never give up searching for answers and treatments, as they may be just behind that closed door. Our kids are worth every single minute of our fight!
When I was born, I couldn't breastfeed. I was a very good girl, so good that I didn’t cause any trouble, something that mom started to get worried about.
Finn worked so hard to finally walk at 4,5 and now can't be stopped. His inability to speak makes it hard to connect with other children, but he wins the hearts and souls with his radiating smile and countless free hugs.
Born against odds due to her father's battle with cancer, Suze's health challenges began early. With a rare mutation in AGO2 requiring constant care, her family navigates the financial strain of uncovered medical expenses with unwavering dedication. Join us in supporting Suze and her family as they bravely face adversity together.