These are some of our stories. Thank you for supporting Argonaute children and our path to a better future for all.
These are some of our stories. Thank you for supporting Argonaute children and our path to a better future for all.
For years, Carrigan struggled to learn and faced challenges with her behaviour. Her mum knew something was different and kept searching for answers. Finally, after years of questions, a genetic test provided clarity and everything made sense.
Born against odds due to her father's battle with cancer, Suze's health challenges began early. With a rare mutation in AGO2 requiring constant care, her family navigates the financial strain of uncovered medical expenses with unwavering dedication. Join us in supporting Suze and her family as they bravely face adversity together.
Malo experiences the world differently. He is insensitive to pain. He faces challenges with emotions and often meets with the world with a "no". He loves cuddles and when his parents say "yes"
Devyn is a sweet, playful young lady who loves cuddles and sensory play. She has gotten much steadier on her feet over the years (thanks to her service dog). She uses her communication device, gestures, and clips from her favorite shows to express herself and is working on her reading and writing skills. Sky’s the limit for Devyn!
Alex started speaking at 2.5 and works hard every day to communicate and grow. With the help of physical, speech, and sensory therapy, he’s gaining new skills and building his confidence.
Johannes' low muscle tone was noticeable right after birth, but even drop seizures did not stop him from learning to walk. With his walking trainer or at the hand he explores the world. Johannes asserts his will even without speech and he delights us daily with his infinite affection.
Eliza suffers from complex febrile seizures from low-grade fever. She finds joy in a new book, a silly face, or a game of hide-and-seek
Albert is nonverbal and attends a special needs preschool. Feeding has never been easy. He finds joy in music and splashing in water
Holly is an extremely happy, peaceful child with the kindest heart. She makes the greatest effort despite the challenges!
Casadee has always been such a joy, full of sass and sunshine! We realized early on that she did not progress like our other daughters’ had, and began a 20-yr-quest for a diagnosis. Never give up searching for answers and treatments, as they may be just behind that closed door. Our kids are worth every single minute of our fight!
Seizures at 5 months required heavy medication, and a weak muscle tone severely impaired development. Yet, many therapies and a year later Emma delighted us all by running. Her development is uncertain, but we are so happy about every step and smile!
He is developmentally delayed- and is currently around two years old mentally. Shrek or any of his favorite movies make him smile.
When I was born, I couldn't breastfeed. I was a very good girl, so good that I didn’t cause any trouble, something that mom started to get worried about.
Jacob is full of joy and keeps learning. While he develops at his own pace, he needs constant support by adults. He finds happiness in the little things—loading the washing machine, riding his bike, and playing the guitar.
Silvana is one of the first children diagnosed with Lessel-Kreienkamp Syndrome (AGO2). Her development has been slower, both mentally and physically, bringing daily challenges that require patience, care, and resilience.