Uxue’s family advocates for change
An AGO1 family on why it is so important to get a diagnosis and find a community
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An AGO1 family on why it is so important to get a diagnosis and find a community
Read moreWe look back with pride and gratitude as we celebrate the anniversary of our very first Argonaute Syndromes conference!
Read moreOur association now formally represents all Argonaute genes, and our families have voted for their new favorite name!
Read more2022 was the second year of our patient group, and what a year it was!
Read moreAdvisory board member Prof. Piton published a new study on the effects of AGO1 mutations in worms with Prof. Ambros & Prof. Zinovyeva. It shows that some Argonaute syndrome mutations affect Argonaute functionality more adversely than the complete loss of Argonaute itself.
Read moreListen to Nora & fellow rare disease advocates at a panel in honour of Rare Disease Day 2023
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