February 28, 2023
Rare Disease Day 2023
On Rare Disease Day, help us spread awareness of the need for more research, earlier diagnosis and better care
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January 30, 2023
Dr. Lessel to lead genetics department at Salzburg University Hospital
Congratulations to Dr. Lessel who has been appointed as Director & Professor at Salzburg University Hospital
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December 28, 2022
Merry Christmas & meet Archie
In collaboration with the Swiss Re Foundation, 17 families have received a surprise Christmas gift and met our new mascot Archie
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December 20, 2022
New video on Argonaute Syndromes Conference
Why our patient group exists and why the first-ever Argonaute Syndromes conference mattered, from the perspective of families, our founder and researchers. All in 3 minutes
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October 25, 2022
Conference report: AGO1 family
"The Argonaute syndromes conference was more than I expected and better than I imagined. I personally met the researchers that discovered my son’s AGO1 disorder!"
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October 17, 2022
Conference report: The power of sharing
The first conference on AGO1- and AGO2-related syndromes took place in Regensburg, Germany, in August 2022. Scientists and families from around the world met to learn about the latest research and share personal experiences.
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