
May 20, 2024
Patient workshop 2024
We're excited to gather again in Copenhagen, Denmark, August 23-25
Read more
May 20, 2024
We're excited to gather again in Copenhagen, Denmark, August 23-25
Read moreMay 4, 2024
Sara Satir, coach and mom of a child with epilepsy, on guilt and living guilt-free
Read moreApril 25, 2024
For DNA Day 2024, we're thrilled to unveil a new family resource
Read moreApril 1, 2024
The 2nd International Patient Workshop will unite families, researchers and clinicians in Denmark in August 2024
Read moreFebruary 16, 2024
🌍 Join the Movement for Rare Disease Day. Spread awareness and show support 🌍
Read moreNovember 19, 2023
Article on the Networking Support Scheme of the EU's European Joint Programme on Rare Diseases highlights our conference
Read more