Our 2025 Annual Impact Report is officially ready. You can download and read the full PDF right here:
Looking back at 2025, we are incredibly proud of what our parent-led group accomplished together:
Our 3rd AGO Conference: We brought together families and world-class researchers to learn from each other, and build closer ties or collaborations.
Advancing Research: We kickstarted new scientific projects and partnerships focused on finding treatments.
A Growing Family Network: Our peer-to-peer parent support group grew to over 200 members globally (90 AGO1 & 125 AGO2).
To our researchers—thank you for your dedication to understanding the science.
To our donors—your support directly helps us connect families and keep this vital work going.
And to our patient families—thank you for your constant trust and sharing this journey with us.