May 10, 2026

Check Out 2025 Conference Highlights

We’ve just released an infographic capturing all the best moments from our Third Patient Family Conference in Prague

Looking back at August 2025, it’s clear the "mood has shifted". We are moving past the basics and taking real steps toward finding a treatment. It was an incredible week of "heartfelt" and "life-changing" connections.

The Quick Stats:

Whether it was discussing symptoms like sleep and vision issues or brainstorming new research paths, every connection brings us "one step closer to answers".

View the Infographic Here

Thanks for being part of this journey with us!