RAREis Global Advocate Grant panel with AGO2
Listen to Nora & fellow rare disease advocates at a panel in honour of Rare Disease Day 2023
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Listen to Nora & fellow rare disease advocates at a panel in honour of Rare Disease Day 2023
Read moreOn Rare Disease Day, help us spread awareness of the need for more research, earlier diagnosis and better care
Read moreCongratulations to Dr. Lessel who has been appointed as Director & Professor at Salzburg University Hospital
Read moreIn collaboration with the Swiss Re Foundation, 17 families have received a surprise Christmas gift and met our new mascot Archie
Read moreWhy our patient group exists and why the first-ever Argonaute Syndromes conference mattered, from the perspective of families, our founder and researchers. All in 3 minutes
Read more"The Argonaute syndromes conference was more than I expected and better than I imagined. I personally met the researchers that discovered my son’s AGO1 disorder!"
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