This unique conference bridges the gap between lived experience and cutting-edge research, boosting scientific understanding, and improving care for affected children.
We have launched a global GoFundMe campaign to raise funds for the gathering.

Your support directly helps patient families attend, connecting them with world-leading Argonaute researchers and other families, and helps cover essential conference costs.
Your donation makes a difference
$20: Provide a meal, printed materials, or support conference activities.
$50: Help with travel costs, live streaming or interviewing an attendee.
$100: Sponsor a patient story poster, or a night’s stay.
Donations to this charity fundraiser are tax-deductible in the US and Switzerland.
Thank you for being part of our mission!