April 20, 2022
Panel recording of Rare Disease Showcase 2022
Our president Nora participated in the patient advocate panel on experiences of diagnosis, access and care
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April 20, 2022
Our president Nora participated in the patient advocate panel on experiences of diagnosis, access and care
Read more
April 4, 2022
Stay up-to-date on our journey, learn about news in the rare disease space and help us spread awareness.
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