We organised the first-ever conference on Argonaute syndromes with leading scientists Profs. Lessel, Kreienkamp, Piton and Meister. 20% of known patient families joined in person or virtually. It was a weekend full of emotions, learning and sharing.
The AGO1-related syndrome was described in late 2021 and given that it is "a similar, if not the same, syndrome" (Profs. Lessel & Piton), we expanded our scope to include AGO1 and welcomed new team and advisory board members.
We sincerely thank all supporters and donors for their solidarity and trust. Thanks to your support we could not only conduct crucial projects, but also significantly increase our savings to finance larger projects in the future that push research into a treatment forward.