Silvana is one of the first children diagnosed with Lessel-Kreienkamp Syndrome (AGO2)—a diagnosis she received at age 5. Her development has been slower, both mentally and physically, bringing daily challenges that require patience, care, and resilience.
Through it all, Silvana finds joy in the things she loves—phones, Coca-Cola, and ice cream. Her journey is unique, and like all children, she deserves happiness, understanding, and support.