AGO Syndromes Conference 2025

• Increase understanding of the features of AGO1 and AGO2 and what this means for children with these diseases

• Help scientists understand the real-life challenges that patients face

• Encourage research ideas and collaborations

• Unite patient families to share experiences and support each other

• Share learnings to raise awareness and engage with the AGO community

• Kari, main organiser

• Jess

• Iben

• Nora

• Aldona

• Antje

Hosted by Prof. Petr Svoboda from the Institute of Molecular Geneticsof the Czech Academy of Sciences

Supported by our scientific advisory board

• Prof. Davor Lessel

• Prof. Amélie Piton

• Prof. Hans-Jürgen Kreienkamp

• Program of the science meeting The Argonautes.

• Virtual sessions are only on Saturday ~13:30 - 17.00

• All times are Central European Time

Program

Friday - Meet & greet, poster session

• 12.00 - 12.30: Registration for families.

• 12.40 - 13.00: AGO alliance presentation during science conference, please join if you can

• 13:00-14.10: Lunch and AGO patient stories. Poster session jointly with scientists

• 14.00-15.30: Families meet & greet and peer exchange

• 15.30: Group picture with scientists

• Time off & transfer to Kolkovna

• 19.00 - 22.00: Conference dinner at Kolkovna downtown. Opportunity to meet and network with other families and scientists.

  • Address: Kolkovna Celnice, V Celnici 1031/4, 110 00 Praha 1. Nearest Metro station: Náměstí republiky. stí republiky. https://celnice.kolkovna.cz/

Saturday - Family workshop

• 09.00 - 12:40: Argonautes and human disease - SCIENCE CONFERENCE PRESENTATIONS - OPTIONAL FOR FAMILIES. We recommend you use the morning to relax or explore Prague and only come to the institute for lunch

• 12:40-13:30 Lunch

• Afternoon: AGO syndrome patients workshop

  • 13:30-15:00 The patient story

  • 15:00-15:30 Coffee break

  • 15:30-17:00 What we know about the syndrome and what this means for your child with Profs. Lessel, Piton, and Kreienkamp, and Dr. Ielesicheva

• Casual dinner for families & AGO Alliance science advisory board at Na tý louce zelený - the name of the restaurant means "On that green meadow" (Google maps). Located next to the conference venue.

Sunday

• Social time to explore the city on your own or with other families

The workshop will take place at the Institute of Molecular Genetics of the Czech Academy of Sciences in Prague (Videnska 1083 - building F, Prague 4, 142220). Please refer to the Argonautes website for more information.

How to get there

• By underground to the station “Kačerov” (red line C), then by bus No. 138 in the direction “Ústavy Akademie věd” to the final stop.

• By underground to the station “Budějovická” or “Kačerov” (both on line C), then by bus No. 193 in the direction “Šeberák” to the station “Zelené domky”, and after walking back about 200 m turn to the left and in ca. 100 m reach the main gate of the campus.

Please refer to the conference booklet

Prague has plenty of cheap accommodation options in hotels or AirBnB.

We recommend the below hotels, which are half-way between downtown and the conference venue. Researchers will also stay at these hotels. Please make your own booking.

Hotel ILF***

A budget three star high-capacity hotel at the Budějovická station, from the bus station Budějovická near the hotel goes bus 193 to the station IKEM or Zelené domky near the Krč campus (or the bus can be changed at the station IKEM to the number 138, which stops at the front gate of the campus).

Rooms are from 70 EUR for a single room to 130 EUR for a quadruple.

Website | Show on a map

Hotel Occidental Praha ****

An excellent four star high-capacity hotel near the Budějovická station, from the bus station Na Strži in front the hotel goes bus 193 to the station IKEM or Zelené domky near the Krč campus (or the bus can be changed at the station IKEM to the number 138, which stops at the front gate of the campus).

Rooms are from 85 EUR for a double room to 200 EUR for a quadruple.

Website | Show on a map

Prague, capital of Czechia, extends over a number of hills on both sides of the river Vltava, and is one of the most beautiful cities in Europe, thanks to its natural location and to more than a thousand years of architectural development. This would be the reason why Prague is called “the city of a hundred spires”. At present, there are around 500 towers in the city. Not only does it have a long architectural tradition, but also a rich artistic, musical and literary history. Over the centuries it has served as an important commercial crossroads and as a meeting place for scientists and artists from around the world. Perhaps that could be the reason why the city is also called “Golden Prague”. It was believed that during the reign of Rudolf II alchemists were invited to Prague who were able to turn ordinary metals into gold.

Prague is a city of mystery and romance as well as a city full of atmosphere. One does not have to believe in spells and magic to be enchanted by the seductive atmosphere of the Old Town (Staré Město) and the Lesser Town (Malá Strana). Especially in the evening dusk the winding streets of booth districts can appear charged with energy.

More about Czechia – www.visitczechia.com
The Official Tourist Website for Prague – www.prague.eu

The above is a reprint from The Argonautes website

Travel stipends are awarded to patient families attending on-site. Learn about conditions and apply via the registration form.

• Registration cost: Conference attendance is free thanks to the generous hosting by Prof. Svoboda and donors.

• Virtual attendance: Sessions on Saturday (~13-17 CET) will be live-streamed as well as recorded.

• Food:

  • Meals on Friday (coffee break, dinner) and Saturday (lunch, afternoon coffee break, dinner) will be provided at the conference

• Language: The official language of the conference is English. Recordings will later be posted on our Youtube channel where you can use auto-translation of captions.

• Child care: No child care will be available. There will be a family base room close-by for you to go and there is a small park with playground at the workshop venue. Ideally bring along someone who can be with your child while you attend the conference sessions.