At just 5 years old, Jacques faces big challenges—developmental delays, mobility struggles, and a world that isn’t always accessible. Diagnosed with Lessel-Kreienkamp Syndrome (AGO2) and autism, his family works tirelessly to keep him safe while navigating a world that often isn’t built for children like him.
But Jacques is more than his diagnosis. He is curious, and has a big love for Shrek, music, and spoons! His family dreams of a future with better support, awareness, and inclusion—so they are not secluded at home.
