November 17, 2024

Annual report 2023

Learn more about our impact in 2023

Highlights

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The EJP RD choose the Argonaute Syndromes conference for a journalistic article as we appreciated that a young patient organisation for a very unknown rare disease organised the first conference on AGO1- and AGO2-related syndromes in 2022. Furthermore, the EJP RD was excited about the excellent information on the outcomes of the conference on the website of AGO Alliance.

Sonja van Weely

Networking Support Scheme Secretariat